Meal Train® for #Charliesangelsineffect

#Charliesangelsineffect

Meal Train® for #Charliesangelsineffect

Our little 5 year old fearless and ball of energy, Charlie, was diagnosed with Neuroblastoma on Monday, September 17th. Neuroblastoma is a childhood cancer that impacts the sympathetic nervous system. She has a tumor on her adrenal gland. It has spread to her chest and neck. Her treatment plan will include chemotherapy (Albany, NY), surgery to remove the tumor (NYC), stem cell transplant (Rochester, NY), and radiation. The entire process will take 1 to 1 1/2 years. Back on September 6, 2018 after her first day of Kindergarten, Charlie had a fever and was fatigue. The fever disappeared the next morning but returned later on that evening. During the weekend, she complained of her stomach hurting her as well as her bones. Her parents knew something was off and scheduled an appointment with her pediatrician. So on Monday, September 10th she went to the doctors. Before her appointment, her mom noticed a bump on her neck. At the appointment, her doctor thought that she might have a viral infection and that her aching bones, might be related to growing pains. Her mother had an inclining that something still seemed off and asked for blood work. The doctor said it was not unreasonable so the following AM, she went for blood work. On Wednesday, her parents got a dreaded call that her blood work seemed abnormal and that they were consulting a hematologist. Twenty minutes later, the doctor notified her parents that the next day she had a 10am appointment with a hematologist. They did blood work and sent them back on their way. About 20 minutes after getting to her aunts and uncles house to pick up “sister”, her parents received a call that some more blood work came back abnormal and that they wanted her to come back to be admitted to the hospital. In the past week, she has had a bone marrow biopsy, blood transfusion, ultrasound, ct scan, bone and tumor biopsy, and a port put in. Starting this upcoming weekend, she will begin her first round of chemo. Donations are amazing, but prayers are priceless. All funding raised will help to cover hospital stays, copay's, hotel and transportation fees, daycare for "sister", and all other monetary needs during this bump in the road. Charlie's mommy is a stay-at-home and her daddy works, but, is taking time off from work to comfort and help our fearless, energetic little girl. This funding and help is to kick neuroblastoma in the butt! Thank you so much for your support!...

$69,670 raised of $80,000 goal from 592 people.  See Who

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#Charliesangelsineffect

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Family Support

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$69,670 raised of $80,000 goal from 592 people.  See Who

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Angel

DF

April 20, 2021 by DANIELLE FERNANDEZ

Thank you so much for your support throughout these 2 and a half years. Yesterday morning Charlie passed away.

Home!

DF

March 22, 2021 by DANIELLE FERNANDEZ

After a long 13 days in Philly we are on our way home.

Almost done??

DF

March 19, 2021 by DANIELLE FERNANDEZ

Tuesday Charlie started her 1st out of 5 doses of radiation to the spine. Like always, she is a rockstar and is handling it well. It looks like we will be here (CHOP in Philly) through the weekend as her last dose of radiation will be on Monday. Also on Tuesday the 16th, she finished her last dose of chemo for this round. She has been doing well with the side effects from chemo. On Thursday, they started her on some total parental nutrition (TPN). This will give her some nutrition because in the last week, she has not really eaten a lot of food (between being sedated and not being able to eat until the radiation for that day is over). TPN will be in liquid form and will be given through her broviak. She will still be able to eat and drink by mouth. All in all, Charlie is doing ok. She still never complains. She has been sleeping on and off throughout the day which is good as she needs rest. To those of you who know personally know Charlie, she still has her sass lol. McKenzie is doing very good too!! Though she misses mommy, daddy, and sister she is having fun spending time with her grandparents:) Thank you again to everyone who has reached out to us. We appreciate everyone’s thoughts, prayers, and offerings. Many people have asked about gift cards. Some that we always use are Cvs, starbucks, dunkin donuts, burger king, mcdonalds, amazon, and uber eats....

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